A discussion on Leadership, Authenticity, and Self-Acceptance in Participatory Research between Jessica Jonikas of University of Illinois, Chicago and Laysha Ostrow.
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This paper describes data collection methods and demonstrates how participatory strategies to involve people with psychiatric histories intersected with Internet research to achieve study aims. People with psychiatric histories were involved in designing and implementing a web-based survey to collect data on peer-run organizations' operations and views on national policy. Participatory approaches were used throughout design, data collection analysis, and dissemination. The extensive involvement of people with psychiatric histories in project design and implementation were important strategies that contributed to this study's success.
Read MoreThe Guidebook for Peer Support Program Self-Evaluation: Practical Steps and Tools can be used to document program operations and outcomes, and to build evidence for the efficacy of peer support programs. In a world of limited resources, conducting evaluations can be a challenge. We created this guidebook in response to frequent requests from peer-run organizations for practical, low-cost, or no-cost tools they could use to evaluate their programs. We have included recommendations on best practices in self-evaluation and data monitoring based on techniques used by other peer support organizations and in the world of program evaluation. It provides basic, practical guidance on developing a logic model, identifying outcomes, selecting measures/ indicators, collecting and analyzing data, and reporting findings.
Read MoreThis research study developed a measure to look at service users’ experience of IPS. The IPSCC scale was found to address three underlying factors: Connection, Risk, and Communication. It had acceptable measurement properties commonly used in scale development, and the results fit with theories of peer support. It can also be used in research studies on other forms of peer support. (PsycInfo Database Record (c) 2021 APA, all rights reserved)
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